And counting...
Just wanted to remind everyone that the walk is fast approaching...Now is the time to start getting serious about those pledges and reaching those personal fund-raising goals...Please let one of the co-leaders know if you are interested in getting some of the BREATHE wristbands...we have plenty! Can't believe the walk is almost here...and can't wait to see everyone...
Go Jeff's Entourage!!!
Monday, May 12, 2008
Friday, May 2, 2008
Attention...
May Declared National Cystic Fibrosis Awareness Month
Team get out there and make everyone aware by getting those sponsors...we only have a month and 5 days to get our donations in, and we still have a lot to go according to all your personal goals...So, from your team leaders...it's time to bust a move!
(Psst...I still have tons of Breathe Wristbands...do I have ANY takers?)
Team get out there and make everyone aware by getting those sponsors...we only have a month and 5 days to get our donations in, and we still have a lot to go according to all your personal goals...So, from your team leaders...it's time to bust a move!
(Psst...I still have tons of Breathe Wristbands...do I have ANY takers?)
Genetic Non-Discrimination Act and Newborn Screening Laws
May 1, 2008
The Cystic Fibrosis Foundation praised the passage of two important pieces of legislation. One law protects those with CF from discrimination based on their genetic disease. The other new bill helps diagnose cystic fibrosis at the earliest stages.
Today Congress passed the Genetic Information Nondiscrimination Act (GINA). Originally proposed more than ten years ago, GINA helps to protect people with cystic fibrosis from discrimination by insurance companies or employers. The law also protects those who carry the defective CF gene, but do not have symptoms of the disease.
The new law provides legal safeguards for people who have been denied health coverage or employment because of genetic information, and makes the act of such discrimination illegal. This law will become increasingly important as genetic testing becomes more widespread. President Bush is expected signed the bill in the near future.
President Bush signed the Newborn Screening Saves Lives Act into law April 24. The bill provides additional resources for new and existing newborn screening programs through 2012. Newborn screening allows cystic fibrosis to be diagnosed early, which gives every newborn a better chance for better health and a longer life.
(Just wanted to share; I received the update through CF Foundation, and thought I would post it for my fellow team members and bloggers)
The Cystic Fibrosis Foundation praised the passage of two important pieces of legislation. One law protects those with CF from discrimination based on their genetic disease. The other new bill helps diagnose cystic fibrosis at the earliest stages.
Today Congress passed the Genetic Information Nondiscrimination Act (GINA). Originally proposed more than ten years ago, GINA helps to protect people with cystic fibrosis from discrimination by insurance companies or employers. The law also protects those who carry the defective CF gene, but do not have symptoms of the disease.
The new law provides legal safeguards for people who have been denied health coverage or employment because of genetic information, and makes the act of such discrimination illegal. This law will become increasingly important as genetic testing becomes more widespread. President Bush is expected signed the bill in the near future.
President Bush signed the Newborn Screening Saves Lives Act into law April 24. The bill provides additional resources for new and existing newborn screening programs through 2012. Newborn screening allows cystic fibrosis to be diagnosed early, which gives every newborn a better chance for better health and a longer life.
(Just wanted to share; I received the update through CF Foundation, and thought I would post it for my fellow team members and bloggers)
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